Posted by: mclaughlinjill
February 21, 2008 |
The following has previously been posted publicly but is useful for consideration as an example and to keep the dialogue open and balanced.
Claims that doctors and researches do not accept or diagnose Myalgic Encephalomyelitis, or that it is inaccurate or that there's no evidence of inflammation are not true and simply red herrings.
There is no need to rename Myalgic Encephalomyelitis or offer an option while keeping CFS or attaching ME to it. This will not help gain acceptance or recognition of anything.
Jill McLaughlin
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Date: Fri, 21 Sep 2007 02:04:02 +0200
Sender: ME/CFS and Fibromyalgia Information Exchange Forum
From: Jan van Roijen
Subject: act,name: ME/CFS -CHANGE the name?
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Send an Email for free membership
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>>>> Help ME Circle <<<<
>>>> 21 September 2007 <<<<
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References (for instance):
*'Chronic Fatigue Syndrome' Challenged*; Help ME
Circle, 20 August 2007; see Co-Cure at:
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0708c&L=co-cure&T=0&P=2209
*ME/CFS -Change THE name*; Help ME Circle, 21
August 2007; see Co-Cure at:
http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0708c&L=co-cure&T=0&P=3195
~jvr
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ME/CFS -CHANGE the name?
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With all due respect, what are we achieving in the
term Encephalopathy?
Myalgic Encephalitis as used by Dr. Melvin Ramsay
was not acceptable to purists who complained that
the brain is not affected or inflamed.
Well I am not so sure. Certain symptoms can be
related to the hippo campus and basal ganglia.
The Canadian definition delineates inflamation and
pathology in various sites, cardiac, thyroid etc.
The "brain fog" by definition is a cognitive problem
centred in the brain.
We seem to be faced with a "not invented here"
problem. CFS/ME was not discovered in Incline
village
Why do we need another name?
Get rid of chronic fatigue syndrome and accept
Ramsay's term, Myalgic Encephalomyelitis, do not
look for the kudos of inventing a new term.
Derek Enlander MD
New York
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