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no name change!
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Posted by: kerrie
April 16, 2008 |
a rose by any other name..... People know what it is even if they don't fully understand the illness. but to change the name will detract from what is already familiar and not help our cause of helping people understand how we are effected or debilitated by it. Keep CFS or Chronic Fatigue. Don't confuse the issue. ME and CFS have been around a long time now. More and more are suffering from it. Doctors are finally recognising it as an illness, multy facidited, not a mental deficencey, or depression, or all in our head as they use to say.
We've come a long way. It would be a backward step to change it's name; to introduce something totally unfamiliar now after all this time. It would not help the cause in people and practitioners to know and understand how we are effected. A new name would only confuse and trivilise our suffering.
MC/CFS says it all -it is familiar - it is recognizable - a change is irrellivent. Moving on and getting real help is what's needed. |
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I disagree!
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Posted by: JohnBit
April 30, 2008 |
I disagree. The name as it is now completely trivializes this horrible condition. It immediately draws a person's attention to one word and only one word: fatigue.
Right away they assume that you are just tired. If fatigue was the only component of this dreadful disease, it would be much easier to live with. The "brain fog", memory problems and general confusion are much more difficult to deal with. This is the part of the "syndrome" that has held me back in my professional life and caused me to lose a good job. I can catch up on sleep with a nap or take my Provigil, but there is no magic pill to make my brain function properly.
This disease needs a better name and it needs it now. I've been barely getting by for 21 years now. As it is today, I'm almost embaressed to tell people what I have as it's generally just laughed off. |
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